VF KC Chapter Meeting


The next meeting of the VF Kansas City Chapter will be December 10, 2016 from 1-3pm at the University of Kansas Edwards Campus, BEST Conference Center, 12600 Quivera, Overland Park Kansas, room 125.

The topic of discussion will be Complementary and Alternative Medicine (CAM) for Vasculitis patients.  We’ll have a couple of videos to watch with doctors from Mayo Clinic and the University of North Carolina, then discussion and personal stories around the topic.

Victory Over Vasculitis 5K

There will be a 5K walk/run, a benefit for the Vasculitis Foundation, put on Saturday, December 3, 2016 at the Liberty North High School, 1000 NE 104th St, Liberty, MO 64068.  Registration is at http://tinyurl.com/VictoryOverVasculitis5k.  Packets are available for pickup at 7:50am, welcome & introductions at 8:45am, start at 9:30am

October 2016 VF Chapter Meeting Minutes


The Kansas City Support Group met on Saturday, October 15, 2016 in room 125 BEST Conference Center, University of Kansas Edwards Campus.  Present were Brad Yates, Debbie Yates, Paula Yates, Glenn Kullman, Arlene Kullman, Linda Gibson, Jim Gibson, Julie Tanner, Mary Tanner, Jude Devonshire,  Marie Dalbey, Tish Varraveto, Michael Brock, Jana Seibel, Teresa Reyes, Lupe Sabala, Shannon Morgan, Joyce Kullman, Denny and Ruth Hale.

Dr. Jason Springer, Director of the Vasculitis Clinic, University of Kansas Medical Center, discussed the possibility of KU Med participating in a phase 3 study for a new drug in the trial stages that could be a prednisone replacement for GPA and MPA patients.  Dr. Springer also asked for feedback regarding the August regional patient symposium presented by KU Med and the Vasculitis Foundation.  He led the discussion on items that went well at the conference and areas for improvement.

Joyce Kullman, Executive Director of the Vasculitis Foundation, announced the next international VF patient symposium would be held next summer in Chicago, IL.  The exact dates and hotel location would be revealed in a couple of months.  She also noted that on Thursday, October 20th at 8 am CDT,  Dr. Richard Watts would be presenting a VF Roadmap to Wellness Webinar titled, "Focus on ANCA-associated Vasculitis."  She shared there will be a 5K walk/run benefiting the VF on December 3rd at North Kansas City High School. 

Attendees were asked to introduce themselves and provide a brief update on their vasculitis status.  The next Kansas/Missouri chapter meeting will be Saturday, December 10th.
The next Vasculitis Foundation KC Chapter meeting will be Saturday, October 15, 2016, from 1pm to 3pm at the BEST Conference Center, Room 125, University of Kansas Edwards Campus, 12600 Quivira Rd, Overland Park, KS 66213.

We had a great Regional Symposium August 6th.  We'll discuss the symposium, and get feedback from Joyce Kullman, Vasculitis Foundation, and Dr. Jason Springer, Director, KU Med Vasculitis Clinic.
Don't forget the Vasculitis Foundation / KU Med Regional Symposium 8/6/16 at KU Edwards Campus.

Upcoming Local KC Meetings; 1pm Edwards Campus, Best Conference Center:
 October 15, 2016
 December 10, 2016
 March 11, 2017
 May 13, 2017

Meeting Minutes, May 14, 2016 Meeting

The Kansas City Support Group met on Saturday, May 14, 2016 in room 125 BEST Conference Center, University of Kansas Edwards Campus.  Present were Brad and Debbie Yates, Glenn and Arlene Kullman, Allison Lint, Linda and Jim Gibson, Julie Tanner, Mary Tanner, Sharon and Luther Brown, Jude Devonshire, Richard Gorell, Fran Totta, Denny and Ruth Hale and Joyce Kullman.

Dr. Jeremy Stevenson, psychologist from University of Kansas Medical Center, presented a program on Living with a Chronic Condition.  He concluded by answering questions from the audience.
Denny Hale, current support group leader, reminded everyone that May was National Vasculitis Awareness Month.  He showed Vasculitius Foundation brochures that included labels with KC Vasculitis Support Group information.  Some of the brochures had been distributed to physician clinic offices.  He asked attendees to take some of the brochures to their physician's offices.

Joyce Kullman, Executive Director of the Vasculitis Foundation, announced that registration opens Monday, May 16th for the Kansas City Vasculitis Regional Symposium Educational Conference to be held August 6, 2016 at the KU Edwards Campus, BEST Building, 12600 Quivira Rd., Overland Park, KS.  Registration deadline will be July 29th.  Denny and Joyce talked about the agenda for the one day regional conference.  Denny asked for volunteers to moderate the diagnosis specific break out sessions.
Attendees were asked to introduce themselves and provide a brief update on their vasculitis status.

Meeting Notice - May 2016


The next KS/MO Chapter, Vasculitis Foundation support group meeting will be Saturday, May 14, 2016, from 1pm to 3pm at the BEST Conference Center, Room 125, University of Kansas Edwards Campus, 12600 Quivira Rd, Overland Park, KS 66213.

Dr. Jeremy Stevenson, Psychologist, University of Kansas Medical Center, Clinical Assistant Professor, will give a presentation on coping with chronic illness.

After the presentation we’ll talk about the upcoming Vasculitis Symposium, August 6th, and what we can do to help.

Don’t forget, May is Vasculitis Awareness month.