The Vasculitis Foundation is "a non-profit organization dedicated to providing emotional and informational support to patients with Wegener's granulomatosis (WG) and other types of vasculitis, to assisting them and their families in understanding the disease and recovery process, to educating and raising awareness in the general public and the medical community about WG and vasculitis, and to supporting research into the cause and cure of these diseases."
http://www.vasculitisfoundation.org