Dr.
Jason Springer, Director of Vasculitis Clinic, University of Kansas Medical
Center, provided an update of the clinic since beginning in July 2013. Dr.
Springer also announced plans for a 2016 Kansas City Regional Vasculitis
Symposium at the University of Kansas Edwards Campus for
patients/families. He requested
attendees of the meeting to each write down the three most important reasons to
attend a vasculitis symposium and three suggestions for the structure for
it. This was followed with discussion of
the ideas. Dr. Springer concluded his
presentation with updates on several clinical trials.
Joyce
Kullman, Executive Director of the Vasculitis Foundation, announced that the
foundation has won a 2015 Philly Award for one of the "Extraordinary
Vasculitis Stories" videos produced by Ed Becker. The competition is sponsored by Nonprofit
Connect to honor the best marketing materials produced by nonprofit
organizations across the country. The
awards ceremony will be held on November 5th.
Joyce also provided reminders of the upcoming webinar events October
29th Vasculitis, Fertility, and Pregnancy: How to Build a Family Despite Having
Vasculitis and November 18th Genetics of Vasculitis and Current Research.
The
meeting was concluded by attendees introducing themselves and providing brief
updates on their vasculitis status.
The next
KC Support Group meeting will be held December 12th at the Best Conference
Center.