Nov 10, 2018 Meeting Minutes

The Kansas City Support Group met on Saturday, November 10, 2018 in room 175 BEST Conference Center, University of Kansas Edwards Campus.  Present were Bill Fenton, John Rizzo, Sondra Schmidt, Allison Lint, Kim Rieger, Julie Tanner, Mary Tanner, Jude Devonshire, Denny Hale, and Ruth Hale.

The group watched a VF YouTube video entitled "When to Seek Unscheduled Medical Care" presented by Susan Wilson, MD, ABEM Emergency Physician.  She is also the mother of an EGPA patient.  Dr. Wilson gave several tips to vasculitis patients.  One was that we should to try to differentiate vasculitis symptoms from other illness symptoms to assist with the doctor’s diagnosis.  She said that ER doctors appreciated hearing what treatments or medications had helped in similar situations before.  She also said patients need to make sure that they have with them a current listing of their medications, physicians with phone numbers, and any known allergies.  The group discussed ways to accomplish this, including phone apps.

Attendees were asked to introduce themselves and provide a brief update on their vasculitis status.
The next KC VF Support Group meeting will be held on Saturday, April 13, 2019.  The next International VF Conference will be held July 19 - 21, 2019 in Minneapolis, MN.