The Kansas City Support Group met on Saturday, November 10, 2018 in room
175 BEST Conference Center, University of Kansas Edwards Campus. Present were Bill Fenton, John Rizzo, Sondra
Schmidt, Allison Lint, Kim Rieger, Julie Tanner, Mary Tanner, Jude Devonshire,
Denny Hale, and Ruth Hale.
The group watched a VF YouTube video entitled "When to Seek
Unscheduled Medical Care" presented by Susan Wilson, MD, ABEM Emergency
Physician. She is also the mother of an
EGPA patient. Dr. Wilson gave several
tips to vasculitis patients. One was
that we should to try to differentiate vasculitis symptoms from other illness
symptoms to assist with the doctor’s diagnosis.
She said that ER doctors appreciated hearing what treatments or
medications had helped in similar situations before. She also said patients need to make sure that
they have with them a current listing of their medications, physicians with phone
numbers, and any known allergies. The
group discussed ways to accomplish this, including phone apps.
Attendees were asked to introduce themselves and provide a brief update
on their vasculitis status.
The
next KC VF Support Group meeting will be held on Saturday, April 13, 2019. The next International VF Conference will be
held July 19 - 21, 2019 in Minneapolis, MN.