Sept 14, 2019 Meeting Minutes

The Kansas City Vasculitis Support Group met on Saturday, September 14, 2019 in room 125 BEST Conference Center, University of Kansas Edwards Campus.  Present were Oleta Taylor, Carla Dettmer, John Rizzo, Jana Seibel, Marcee Mossberg, Kim Flynn, Allison Ross, Mindy Manes, Denny Hale, and Ruth Hale.

The meeting focused on discussion of the 2019 Vasculitis International Symposium in July.  Attendees at the conference (Allison Ross, Mindy Manes, and Denny and Ruth Hale) discussed various topics from the symposium.  They also distributed “My Journey” journals to the support group attendees.  The Journals were designed by Suzanne DePaolis, President of the Vasulitis Foundation Board, with the idea of assisting patients to track symptoms, medications, and doctor appointments.

Support group attendees were asked to introduce themselves and provide a brief update on their vasculitis status.

The next KC VF Support Group meeting will be held on Saturday, November 9, 2019.