Nov 9, 2019 Meeting Minutes


The Kansas City Vasculitis Support Group met on Saturday, November 9, 2019 in room 125 BEST Conference Center, University of Kansas Edwards Campus.  Present were Carla Dettmer, John Rizzo, Bill Fenton, Marilyn Fenton, Linda Gibson, Jim Gibson, Ros Manes, Denny Hale, and Ruth Hale.

The subject for the meeting was The Immune System and Autoimmune Disorders.  Attendees watched Vasculitis Treatment and Your Immune System:  The Good, the Bad, and the Encouraging video presented by Carol Langford at the 2019 Vasculitis International Symposium.  Also discussed was the book, An Elegant Defense by Matt Richtel.

It was announced that a Vasculitis Foundation video produced by a team of young adult patients with vasculitis recently earned an award as Best Short Video in the 2019 Nonprofit Connect Philly Awards.  The Young Adults with Vasculitis Look to the Future video was also viewed by attendees.

Support group attendees were asked to introduce themselves and provide a brief update on their vasculitis status.

The next KC VF Support Group meeting will be held on Saturday, April 11, 2020; same time, same place.