The KC Chapter meeting was held in the Fountain Dining Room at St. Luke's Hospital at 1:00 p.m. with the following members in attendance:
Dr. Ann Warner
Arlene and Glenn Kullman
Annette and Traci Marriott
Joyce Kullman
Bob and Sharon Schoonover
Chad Gratton
Judy Harrington, Chad's guest
Bob and Rosemary Peskin? Giant Cell
Sondra Schmidt
Carla Trigleth and spouse Behcets
Dr. Warner opened the meeting by asking each patient to have a question for her to discuss and answer. She then discussed each one until the patient was satisfied. She explained the ANCA and talked about how it isn't used for some of the vasculitis diseases. She says she uses what the patient tells her to help with the diagnosis. She discussed Prednisone and for some patients it causes personality changes. She discussed Behcet's and Carla related to many of the symptoms. She and her husband are newcomers to the KC area; they are from Jackson, Mississippi and thoroughly enjoyed the snow.
Joyce has information at her office about the National Behcet's clinic and will forward it to Carla.
Dr. Warner spent an hour with the Group; we let her know we appreciated her giving up an hour on a Saturday afternoon to be with us.
Sharon asked Dr. Warner . how to get mail directly to a Physician instead of it being tossed in the circular file. She said to be sure the Vasculitis Foundation name and address stood out on the envelope; the Schoonovers want to get information to many doctors regarding Vasculitis diseases so they at least consider the possibility it could be one of them, thereby making the diagnosis quickly.
Bob and Sharon talked about the upcoming 5k run/walk/bike on April 24, 2010 at the Shawnee Mission Park. It will be followed by a potluck meal. Sharon talked about how convenient and beautiful the trail is and how they hope there will be a large group participating.
We did not set a date for the next meeting.
Submitted by Arlene R. Kullman